- AutismMomTM, the OG
- 2005-2009 Executive Vice President and a member of the Board of Directors at Autism Speaks
Autism Science Foundation BIO | Alison Singer As the mother of a child with autism and legal guardian of her adult brother with autism, Alison is a natural advocate. Since 2007, Singer has served on the national Interagency Autism Coordinating Committee (IACC) which is charged with writing a strategic plan to guide federal spending for autism research.
Within the IACC, she serves as co-chair of the safety subcommittee and on the subcommittees for Strategic Plan Review and Services. Singer also currently serves on the executive board of the Yale Child Study Center, on the external advisory board of the Marcus Autism Center at Emory University, and on the external advisory board of the CDC’s Center for Birth Defects and Developmental Disabilities.
Alison chairs the International Society for Autism Research public relations committee and is a member of the IMFAR program committee and community advisory committee. She graduated magna cum laude from Yale University with a B.A. in Economics and has an MBA from Harvard Business School. – via autismsciencefoundation.org
Singer’s Influence Network . . . (new images to be added)
YALE BIO | Alison Singer is Co-Founder and President of the Autism Science Foundation which supports autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research. Founded by parents of children with autism, ASF also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. The organization adheres to rigorous scientific standards and values.
As the mother of a child with autism and legal guardian of her adult brother with autism, she is a natural advocate. From 2005-2009 she served as Executive Vice President and a member of the Board of Directors at Autism Speaks. In 2007, Singer was appointed by Health and Human Services Secretary Michael Leavitt to serve as one of six public members of the Federal Interagency Autism Coordinating Committee (IACC) which is charged with writing a strategic plan to guide federal spending for autism research. Within the IACC, she serves on the services subcommittee and on the subcommittee for strategic plan review. Singer also currently serves on the Executive Board of the Yale Child Study Center Associates Committee, on the external advisory board of the Autism Baby Siblings Research Consortium, on the external advisory board of the CDC’s Center for Birth Defects and Developmental Disabilities, on the board of directors of Mental Health News, as a member of the American Academy of Pediatrics’ New York State Immunization Coalition, and as a member of the program committee for the International Meeting for Autism Research (IMFAR). Singer also played a critical role in the passage of the Combating Autism Act of 2006, which authorized the doubling of current federal funding for autism research.
Singer is a frequent spokesperson on issues related to autism and autism research, appearing on Oprah, NBC Nightly News, CNN, Good Morning America, CBS Early Show and many other news programs and national newspapers.
Prior to joining Autism Speaks, Alison spent 14 years at NBC and CNBC, in a variety of positions. From 1994-1999 she served as Vice President of Programming in NBC’s Cable and Business Development division, where she launched NBC Desktop Video and oversaw long-term planning for both CNBC.com and MSNBC.com. Prior to that she served as Producer of several top-rated CNBC programs, including The MoneyWheel, MarketWrap, Capital Report, Power Lunch,Wall Street Journal Editorial Board and Wall Street Week with Louis Rukeyser. In 2005, she produced the award-winning CNBC series Autism: Paying the Price.
Singer graduated magna cum laude from Yale University with a B.A. in Economics and has an MBA from Harvard Business School.
Alison is married to Dan Singer, a director in the media practice of management consulting firm McKinsey & Company. They live in Scarsdale, NY with their two daughters, Jodie (12) and Lauren (10).
Wikipedia.org |Autism rights movement |Autism Speaks boycott
In addition to its cultural impact, Autism Speaks has been criticized for ignoring and excluding people with autism. Until he resigned in 2013, John Elder Robison was the organization’s only board member openly recognised as being on the autism spectrum. His resignation came two days after the release of an op-ed by the group’s co-founder Suzanne Wright which, according to Robison, “is simply not defensible for someone who feels as I do, and I cannot continue to stand up for the public actions of an organization that makes the same mistakes over and over again by failing to connect to the community it purports to represent.” Simone Greggs, the mother of a child with autism, filed a lawsuit against Autism Speaks for disability discrimination after her job offer was rescinded. The suit alleges that she lost the job offer due to asking for an accommodation on behalf of her son.
Autism Speaks has produced three major films, each met with strong opposition from the Autistic community. Autism Every Day is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there. In one interview, former board member Alison Singer, mother of a daughter with autism, reveals she contemplated murder-suicide with her daughter in the same room. I Am Autism is a short video that personifies autism as a narrative voice, which compares itself to several diseases and makes the false claim of causing divorce.Sounding the Alarm is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized for being “full of dehumanizing rhetoric” and portraying ignorance of nonverbal communication.
Because of the number of objections to the organization, Autism Speaks fundraising events have been the object of organized protest. Many of these protests are organized by the Autistic Self Advocacy Network. In 2013, the organization Boycott Autism Speaks published a list of companies that donate money to Autism Speaks along with their contact information, urging those in the Autistic community to pressure those companies into dropping their support via an active boycott, since direct appeals to Autism Speaks did not result in the desired changes. A month later, ASAN published its 2014 Joint Letter to the Sponsors of Autism Speaks, signed by 26 different disability-related organizations, appealing to the moral responsibility of the sponsors, donors, and other supporters.
“Alison Singer spoke next. In addition to being the head of the Autism Science Foundation and an IACC member, Singer is notorious for having once said, on video and in full earshot of her own autistic child, that she had considered committing disability-motivated murder suicide but the thought of leaving her normal child alone kept her from doing so.
“Many people with [with high support needs] are not able to come to the table and represent themselves and so they rely on their parents who I promise you do not give birth hoping that one day they’ll be able to file for guardianship to represent them.
“My daughter for example would not be able to physically sit at this table for more than five minutes… Because of her intellectual disability, she would not be able to really understand the conversation or advocate in any way for policies that would support her civil rights. (the TOO disabled and NOT disabled enough argument right there in our government)
So there is a large segment of our population that rely on parents to advocate for them.”
“Singer seemed completely unaware that there are many advocates with intellectual disabilities working in policy. She went on to question the validity of using “autism” to describe autistic members of IACC and people “like her daughter.” She then claimed, “just by sitting here and watching [autistic members of IACC] interact,” she could diagnose that her child is not like autistic adults who speak.”
Alison Singer (Johns Hopkins University) will track parents’ work-related exposure to asthma-provoking chemicals during pregnancy. The goal is to determine how the inflammation of an asthmatic reaction in the mother may affect prenatal brain development and autism risk.
(note: AgeofAutism is not an Autistic ally, they are an #AutisticSilencer going back at least a decade. Posting here so their article about her can be read — and comments they quoted by Alion singer and some history.)
From an employee:
“Her brother is autistic + her daughter is autistic = autism is genetic. The Singer version of autism may be the 1-2% that is purely genetic. Because she is a selfish bitch with a heart smaller than a raisin, she want to pour as many dollars into genetic and pre-natal research as possible. Alison, much of Autism Speaks, and NIH would gladly abort societies way out of the autism epidemic. I mean, if you are the kind of person who would discuss murdering your daughter while she is sitting in the room with you, abortion is a layup.”
“Iron fist with all staffers. Except flatterer to Suzanne Wright. All staff were afraid to cross her. She’s a screamer. She filtered the information which came in to Bob and Suzanne from the autism community. Anything remotely threatening or hostile was sent to them to marginalize biomed parents.”
“Suzanne Wright’s mother passed. Alison sat front row, next to the Wright’s, and cried her eyes out. This is an 80+ year old woman who lived a full life! She’s a more ruthless Eddie Haskell, and she played Suzanne like a fiddle, it was amazing how she could roll the charm out when she needed it, and then draw her fangs back out the minute SW was gone. She understood Suzanne’s desire to be a hero and get some public attention (rather than hubby) and played her off against her own daughter. She’s wickedly smart, and amoral. She personally set AS back 5 years.”
More to be added. If you have info to help support highlighting the #AutisticSilencer, Alison Singer, please drop it in the comments below or email Eve Reiland at email@example.com. I’ll work on updating this page continuously.
Time to show the world how this BS fucks us.
(Note: This information is via AgeofAutism.com — these are silencers as well, NOT allies. However they share a discontent with Alison Singer and have some info of interest and patterning for us.)
Alison Singer: autism parent, IACC seat usurper, industry front group founder, recent guest on The Dr. Oz Show, and now – loyal Pharma-funded wife. Of course, that’s what she’s always been. We just didn’t know it, until now.
Mrs. Singer is married to Dan Singer, a longtime employee of McKinsey and Company: a global management consulting firm. Singer’s firm sponsors one of the awards given out by the British Medical Journal, which published and even endorsed British Pharmaceutical Industry sock puppet Brian Deer’s false allegations of fraud against Dr. Andrew Wakefield. McKinsey is not Pharma, you might say. True to an extent, but McKinsey’s commitment to the industry is significant. In the “industry practices” category of “client service,” McKinsey and Co. has a whole page on “Pharmaceuticals & Medical Products,” where they offer a wide range of consultation services to the pharmaceutical industry on everything from prescription pharmaceuticals, to over the counter medicines, to biotechnology and medical products and diagnostics. In 2006, in the company’s quarterly, an article was even run entitled “Avian flu: Expanding global vaccine production.” The avian flu vaccine is preserved in 49 micrograms of mercury, approximately twice that of a season flu shot.
But on January 12 McKinsey did more than consult for the pharmaceutical industry; they partied with its leading vaccine spokesman, millionaire vaccine industrialist Dr. Paul Offit.