Initial $2.26 Million Award Funds Project That Will Serve as a Unique Resource For Families and Researchers
(New York, New York — January 17, 2006) — Autism Speaks, a non-profit organization dedicated to increasing awareness about the growing autism health crisis and raising funds for critical autism research, today announced that its board of directors has voted to fund a program for the development of a national autism database.
Kennedy Krieger Institute, one of the nation’s leading treatment centers for autism and other developmental disorders, will develop the open, interactive database.
Autism Speaks is making an initial three-year commitment to the project, beginning with an award of $2,266,000 for the first year. This is the first award of over a million dollars given out by Autism Speaks, which was founded in February 2005.
“The funding of this program is an important first step in Autism Speaks’ efforts to advance innovative autism research,” said Mark Roithmayr, president of Autism Speaks. “The database project has the potential to create a powerful tool for thousands of families, educators and researchers across the country and around the world.”
The national online autism database will serve as a shared resource to centralize registration of families and individuals with autism spectrum disorders and connect them with researchers, parents and other individuals with autism throughout the country and the world.
In addition to supporting scientific investigation, it will provide individuals and families affected by autism with unprecedented information about the experiences of others and serve as an open resource for educators and policy makers.
A longitudinal database will enable families and individuals to participate in an online study aimed at understanding the patterns of treatment use and responses to those treatments.
Online community features including internal message boards, researcher chat sessions, member profiles, a calendar, and links to outside autism resources are also planned.
The fostering of communication between families and the research community will not only lead to research of the highest quality, but also invite parents to have direct input regarding the scientific and policy questions to be investigated.
Dr. Paul Law of the Kennedy Krieger Institute will oversee the development of the resource. According to Law, parental and scientific advisory boards will have continual influence on the project so that both parent and research interests are constantly considered. The data collection and management processes will be designed with careful attention to confidentiality and medical ethics, added Law.
“Our expectation is that, by creating a unique network of research scientists and families, the database will become an unprecedented source of information that will dramatically increase our knowledge and understanding of autism spectrum disorders,” said Dr. Law.
Today, one in 166 individuals is diagnosed with an autism spectrum disorder. It occurs in all racial, ethnic, and social groups and is four times more likely to strike boys than girls. Autism impairs a person’s ability to communicate and relate to others.
ABOUT AUTISM SPEAKS
Autism Speaks is committed to aggressively funding global biomedical research into the causes, prevention, treatments and cure for autism. It is devoted to raising public awareness about autism and its effects on individuals, families and society, and to bringing hope to all who deal with the hardships of the disorder. Autism Speaks was co-founded by Suzanne and Bob Wright in February, 2005 in response to the diagnosis of their grandson. Bob Wright is Chairman and CEO of NBC Universal and is Vice Chair of General Electric. To learn more about Autism Speaks, please visit its web site at www.autismspeaks.org.
ABOUT KENNEDY KRIEGER INSTITUTE
Internationally recognized for improving the lives of children with developmental disorders, Kennedy Krieger Institute in Baltimore, Md., serves more than 12,000 children each year through inpatient and day treatment programs, outpatient clinics, home and community services and school-based programs. Kennedy Krieger provides a wide range of services for children with developmental concerns mild to severe, and is home to a team of investigators who are contributing to the understanding of how autism develops, while pioneering earlier autism diagnosis and interventions. Every year, more than 400 people come to Kennedy Krieger to train with experts in a wide variety of pediatric disciplines, including developmental medicine, psychology, physical therapy and special education. For more information, visit www.kennedykrieger.org.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.