One Year After Hurricane Katrina’s Devastating Impact, AutismCares Again Invites Families of Children with Autism to Register and Get Connected
Consortium of Autism Organizations Provided Critical Assistance to More Than 150 Families and Raised Over $130,000 for Those Impacted by 2005’s Worst Hurricanes
(BOISE, IDAHO — August 29, 2006) – AutismCares, a consortium of leading autism organizations created to spearhead a national emergency relief and recovery initiative in the wake of last year’s devastating hurricanes, is again inviting all families with a member diagnosed with an autism spectrum disorder to pre-register through AutismCares’ Web site, http://www.autismcares.org/, to ensure trained case managers are able to locate them more effectively in case disaster strikes their families.
Registered families can more readily receive an array of emergency services as soon as storms pass through their impacted areas. More than 480 families have already been registered on the AutismCares database.
The AutismCares initiative was created in September 2005 in response to the devastating impact of Gulf Coast hurricanes to coordinate support for the unique needs of thousands of families affected by autism.
Children with autism often require intensive biomedical and behavioral therapies and thoroughly planned routines. AutismCares created a network to support families whose struggle with autism was intensified by natural disaster, forced relocation and scarce resources. An estimated 53,000 families with children who have autism were affected by the three worst hurricanes in the history of the United States.
Through its partner organizations, AutismCares has raised more than $130,000 with funds going toward supplies, housing and support case managers who work to coordinate assistance for affected families. This relief and recovery program, managed with oversight by Boise State University Center of Health Policy, created an in pouring of funds and in-kind donation offers from across the country. The organization has directly assisted more than 150 severely impacted families with shelter, food and counseling support, while hundreds more have been supported in other ways.
AutismCares has facilitated temporary/permanent relocation support, mobilized specialty assistance teams and provided autism-conscious supplies directly to affected families and the professionals caring for them. To address long-term needs, AutismCares advocated and implemented proactive rehabilitation and assistance programs in coordination with officials from other relief agencies to help families rebuild their lives.
“While all of us hope that our services won’t be required this year, we nevertheless urge families to think proactively and take advantage of this opportunity to register in advance of any potential emergencies,” said Ron Oberleitner, a member of AutismCares executive committee. “By registering now, families can help us deliver services to them much faster and more efficiently, should the need arise.”
AutismCares is a consortium of Autism Speaks, Boise State University, Cure Autism Now, First Signs, Princeton Autism Technology, Southwest Autism Research & Resource Center, TalkAutism, The Help Group and Unlocking Autism, and is supported by many other autism organizations.
Visit http://www.autismcares.org/ for additional information about: the AutismCares 2005 Gulf Regions Hurricane initiative; current newsroom information; aid coordination for families living with autism; and access to AutismCares’ online ‘disaster registry’. The legal account of AutismCares has resided with the Boise State University Foundation – c/o Center for Health Policy. BSU Center for Health Policy has provided fiscal oversight, as well as resources to ensure expedient and compliant public health policy and support.
Autism is one of the fastest-growing and most prevalent childhood developmental disorders in the United States, affecting as many as one in every 166 births (source: Centers for Disease Control and Prevention). Autism is a neurological disorder that interferes with normal development in language, intuitive thought, social interaction and an ability to connect with surroundings. Approximately half of all children with autism are unable to communicate their needs using spoken words. Most are unable to accommodate changes in their daily routines. Associated problems include hyperactivity, self-injurious behavior, sleeplessness, eating disorders and gastrointestinal problems. Order and consistently administered therapeutic interventions are critical to the affected child and family’s well being.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.