World Premiere Screening to be Followed by Autism Awareness Panel with Filmmaker, Producers and Parents of Children with Autism
(NEW YORK, NY – Jan. 2, 2007) – Autism Every Day, a powerful documentary that takes viewers inside the lives of families struggling to raise children with autism, has been selected by the Sundance Institute as a special screening film at the 2007 Sundance Film Festival.
The Sunday, January 21, world premiere of the 44-minute film — which will be screened out of competition — will be followed by a special autism awareness panel featuring the filmmakers and parents who appear with their children in the film. Additional screenings will take place January 22 and 27.
A 12-minute version of Autism Every Day was first produced for, and screened at, “A New Decade for Autism,” a fundraising event held May 9, 2006, in New York to benefit Autism Speaks and the New York Center for Autism Charter School.
The film was intended to be shown one time only, but was subsequently broadcast by Don Imus on his MSNBC and nationally syndicated radio programs. It quickly spread virally through the Internet, first among members of the autism community and then beyond, generating tens of thousands of views on various web sites and blogs.
The tremendous online popularity of the documentary led Autism Speaks to create the longer, 44-minute version of the film that included additional families and their compelling stories.
Autism Every Day is a truthful, unvarnished portrayal of the 24-hour-a-day challenges faced by families as they confront the heartbreak of autism with uncompromising hope and unconditional love.
“We are honored to have Autism Every Day selected for special recognition in this year’s Sundance Film Festival, reflecting the Sundance Institute’s on-going tradition of screening films that reflect the most important issues facing our society,” said Bob and Suzanne Wright.
“This film provides a vivid window into the unique challenges — the hopes and frustrations — of the hundreds of thousands of individuals and families like ours affected by autism in this country.”
“My family has been touched directly by the autism epidemic and living with the day-to-day struggles and joys was enough motivation for us to get this film made,” said Thierry, whose son Liam is diagnosed with Autism Spectrum Disorder.
Autism Every Day wrenchingly follows a cross-section of families — families representing the upper and lower end of the financial spectrum and different ethnic backgrounds– whose lives have been turned inside out by an epidemic that the Centers for Disease Control estimates is diagnosed in 1 in 166 children.
Each family’s story blends together in an unrelentingingly similar quilt: parents who have had to both quit careers and borrow outlandish sums of money to pay for therapies and schools; the staggering reality of letting go of traditional dreams for their children — little league, trips, dating — in exchange for the joy of a child finally being able to brush his teeth at age 6 or a 9 year-old who has learned to say ‘l love you, mommy.’
The documentary’s opening chilling montage shows children struggling to communicate, screaming, and one child dashing down the street unaware of the speeding traffic ahead. A family with three children on the autism spectrum recounts having to quit friendships with people who don’t understand the 24/7 demands of a five year-old who has yet to utter a single word or the 40-50 hours of therapies that are not reimbursed by insurance. A hole in the roof goes unrepaired for two years as they borrow yet again against their home.
As one mother so eloquently explains, “He is trying so hard to stay inside himself and I am trying so hard to pull him out. I can never die; I have to live forever.”
But Autism Every Day also captures the unconditional, powerful love of the exhausted, not to be broken parents. Its candid portrait somehow reminds us that where there is love there is hope and that hope brings with it the joys of even the smallest successes.
The 2007 Sundance Film Festival runs January 18-28 in Park City, Sundance, Salt Lake City and Ogden, Utah. The following are the screening times and locations for Autism Every Day:
Sunday, January 21, 10:00 a.m., Holiday IV
Monday, January 22, 2:30 p.m., Holiday I
Saturday, January 27, 7:30 p.m., Broadway 6
Autism is a complex brain disorder that inhibits a person’s ability to communicate and develop social relationships, and is often accompanied by extreme behavioral challenges. Autism spectrum disorders are diagnosed in one in 166 children, affecting four times as many boys as girls. The diagnosis of autism has increased tenfold in the last decade. The Centers for Disease Control and Prevention have called autism a national public health crisis whose cause and cure remain unknown.
ABOUT AUTISM SPEAKS
Autism Speaks is dedicated to increasing awareness of the growing autism epidemic and to raising money to fund scientists who are searching for a cure. It was founded in February 2005 by Suzanne and Bob Wright. Bob Wright is Vice Chairman and Executive Officer, General Electric, and Chairman and CEO, NBC Universal. Autism Speaks and Cure Autism Now (CAN) recently announced plans to combine operations, bringing together the two leading organizations dedicated to accelerating and funding biomedical research into the causes, prevention, treatments and cure for autism spectrum disorders; to increasing awareness of the nation’s fastest growing developmental disorder; and to advocating for the needs of affected families. To learn more about Autism Speaks, please visit www.autismspeaks.org.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.