ADDITIONAL STATEMENTS FOR THE RECORD
Senator Harkin. Well, I hope and trust that we’ll be
looking at that and that NIH will be examining that. I hope
this May 1 IRB will come through and it will be moving ahead on
that, in that area of research.
[The statements follow:]
Prepared Statement of Senator Thad Cochran
Mr. Chairman, thank you for scheduling this hearing to discuss
autism and the spectrum of disorders related to autism. Since the month
of April has been designated by the Senate as “National Autism
Awareness Month,” it is fitting that we have a discussion on this
important issue during this time.
We welcome Dr. Gerberding and Dr. Insel as members of the panel today. As leaders of Federal agencies tasked with autism surveillance, research, and treatment, your insight
into current programs and your vision of future efforts to combat this
disorder is important. We appreciate other distinguished panel members
joining us today to provide their unique perspectives of the impact of
autism disorders. We look forward to your comments and your direction
on how this committee can be helpful in addressing your concerns as we
move through the appropriations process.
Autism Spectrum Disorders are developmental disorders which affect
a child’s social interaction, behavior, and basic ability to
communicate with others. The prevalence of autism-related disorders
continues to increase, with recent Centers for Disease Control and
Prevention reports estimating that 1 in 150 children in our country is
affected, referring to this increase as a national public health
crisis. Despite the increased attention to autism in recent years, the
cause remains unknown and a cure is not available.
Congress has been responsive to this heightened public awareness
and focus on autism from the medical community. The Combating Autism
Act of 2006, which I cosponsored in the last Congress, was signed into
law in December. This comprehensive legislation authorizes
approximately $800 million over the next 5 years for research, early
detection and intervention of autism. For the upcoming fiscal year, the
President’s budget contains no new funding for the Combating Autism Act
and recommends level funding, approximately $115 million, for existing
autism programs at the CDC and the NIH. Autism advocates have requested
an increase in this funding to $168 million to expand autism efforts.
I look forward to your comments on the status of the current
programs and on how an increase in autism funding would be used.
Prepared Statement of Allison Chapman
To Whom It May Concern:
I am a parent of a child who regressed into Autism after his vaccinations. I have several areas I would like addressed at these hearings and I hope that an A-CHAMP representative will be there to represent my son and the hundreds of thousands of others with the same story.
The following are a list of my questions,
–Will there be money for double blind studies using the DAN! (defeat
autism now) protocal?
–Is there an understanding that Autism is a Whole Body Illness which
can be treated?
–Will there be a vaccinated vs. non-vaccinated study?
–Will there be monies for studies on the dangers and implications of
thimerosal (49.6 percent ethyl mercury) like the Burbaker
–Will there be an extension to these genetic studies to find out if
it is Mercury (a known mutagen) that is causing deletions and
mutations in the DNA?
–WILL THERE BE BIOLOGICAL TESTS TO FIND OUT WHAT’S GOING ON IN THESE
KIDS BODIES THAT MIGHT BE CAUSING THE BRAIN DIFFERENCES?
–Will there be monies to teach Drs and pediatricians that Autism can
have many medical issues that need treatment and to refer them
to professionals who understand this like DAN!s, Toxicologists,
–Will you separate vaccine safety into a separate, independent
organization other than the CDC which is the org that mandates
them (A tremendous conflict of interest)?
In my mind there are 4 areas of Autism that need attention.
Diagnosis, Educational intervention, whole body medical treatments that
are already helping these children and research broken into BOTH
environmental and genetic pieces.
I’ve seen much in the areas of diagnosis, education, and genetics but by concentrating on those only leaves the biggest areas untouched. This is about the children and
making them better or else the windfall of financial assistance it will
take to support these kids who don’t get treatment for the rest of
their life, will most likely bankrupt this country. Thank you so much
for your time. I truly do look forward to what happens in this Senate
hearing, I am hoping you side with the children no matter what.
Prepared Statement of Anna W. Wolk
I am the very proud mother of a young man diagnosed with PDD/NOS-
high functioning Autism at the age of 3. Adam is now 14–nearly 15–and
as puberty has set in, so have many new behaviors. He has become
frustrated with an inability to express his anxiety over the many
changes occurring within his body, and as a result has become
aggressive with us, his parents. What has become increasingly clear to
me as we travel our journey that is autism is three things:
(1) We all (as parents of any child) have the same destination in
mind–we are simply traveling different routes to get there,
(2) There are many books and tons of advice for the parents and
families of newly diagnosed children, but nothing of substance for
those of us who have made it to the teen years,
(3) The State of Illinois is not servicing our children as well as
the rest of the Nation. Why is it that, when my son turns 20 years 364
days old, he is cut loose from the system. Is it the State of Illinois’
opinion that, on my son’s 21st birthday he is magically cured? If only
it were true!
It is a disgrace that we are ranked 48th out of the 50 States in
services for our Special Needs children and their families–and we must
include the families, as Autism affects the entire family unit.
Luckily, my husband and I have not become one of the many couple
who have divorced due to the pressures of raising a child with autism,
but I can tell you the toll–both emotional as well as financial–is a
huge burden. And the effect on the siblings is enormous as well, as
they don’t get ot have a normal childhood either. Simple things like
birthday parties, sleep overs or even extra-curricular sports require
enormous analyzing before undertaking them. Many times, the siblings
just have to forego many of the usual rites of childhood because of
their siblings needs.
When it is time to plan for the disabled child’s future, there is
no central “clearinghouse” of information regarding residential
settings, day programs, vocational training, etc. It’s purely luck of
the draw and word of mouth. Many times, it comes down to who you know.
Well, I don’t know anyone. I don’t have any idea where to begin
this new phase of my son’s life, and there’ s no direction from the
school system. I feel lost to my son, and I feel lost as to how to help
ANYTHING you can do to help centralize information for parent’s and
families would be an enormous help.
Current statistics reveal that 1 in every 150 children is diagnosed
with Autism–one of them is my son.
Help create a miracle–support Autism Research and Awareness.
Thank you for your time.
Autistic people have fought the inclusion of ABA in therapy for us since before Autism Speaks, and other non-Autistic-led autism organizations, started lobbying legislation to get it covered by insurances and Medicaid.
ABA is a myth originally sold to parents that it would keep their Autistic child out of an institution. Today, parents are told that with early intervention therapy their child will either be less Autistic or no longer Autistic by elementary school, and can be mainstreamed in typical education classes. ABA is very expensive to pay out of pocket. Essentially, Autism Speaks has justified the big price tag up front will offset the overall burden on resources for an Autistic’s lifetime. The recommendation for this therapy is 40 hours a week for children and toddlers.
The original study that showed the success rate of ABA to be at 50% has never been replicated. In fact, the study of ABA by United States Department of Defense was denounced as a failure. Not just once, but multiple times. Simply stated: ABA doesn’t work. In study after repeated study: ABA (conversion therapy) doesn’t work.
What more recent studies do show: Autistics who experienced ABA therapy are at high risk to develop PTSD and other lifelong trauma-related conditions. Historically, the autism organizations promoting ABA as a cure or solution have silenced Autistic advocates’ opposition. ABA is also known as gay conversion therapy.
The ‘cure’ for Autistics not born yet is the prevention of birth.
The ‘cure’ is a choice to terminate a pregnancy based on ‘autism risk.’ The cure is abortion. This is the same ‘cure’ society has for Down Syndrome.
This is eugenics 2021. Instead of killing Autistics and disabled children in gas chambers or ‘mercy killings’ like in Aktion T4, it’ll happen at the doctor’s office, quietly, one Autistic baby at a time. Different approaches yes, but still eugenics and the extinction of an entire minority group of people.
Fact: You can’t cure Autistics from being Autistic.
Fact: You can’t recover an Autistic from being Autistic.
Fact: You can groom an Autistic to mask and hide their traits. Somewhat. … however, this comes at the expense of the Autistic child, promotes Autistic Burnout (this should not be confused with typical burnout, Autistic Burnout can kill Autistics), and places the Autistic child at high risk for PTSD and other lifelong trauma-related conditions.