Archived | Autism Speaks: Autism Epidemiology Network | Circa 2007 #NotAnAutisticAlly

Autism Speaks and the CDC have established an international information sharing network to study the epidemiology of autism Our Mission Autism Speaks and the Centers for Disease Control and Prevention (CDC) are co-sponsoring an initiative to explore possible scientific opportunities in an international collaborative effort in autism epidemiology. The long range objectives of this project are to …

Divergent Flair & Autistic Style: An Introduction To My New #AutisticFashion Project | EVE REILAND

Introduction to my new project focused on fashion and advocacy at >> More With Divergent Style and Autistic Fasion Here >> I love Autistic Fashion & Divergent style. The Autistic and Divergent communities have a definite flair for expression from super colorful glam sparkle to casual but iconic t-shirts, muted colors and comfort wear.  …

Please don’t talk about me like I’m not there


“Is she autistic?” the woman asked my mom’s friend as I walked by.  I suspected she was talking about me but I held out some small hope that she wasn’t.  When my mom’s friend started to reply “She’s my friend Cathy’s daughter and she- ” all doubt was removed. I didn’t hear the rest of what she said because I left the room. I had no desire to listen to  people discussing me and my diagnosis right in front of me as if I couldn’t hear or understand them. If they were going to talk about me as if I wasn’t in the room, then I was going to leave the room. I’m lucky that I had the ability to make an exit.

I’m not sure what tipped this woman off. Maybe my mom’s friend had been talking to her about me. Maybe it was my pacing and flapping that…

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Autism Is Not a Behavioral “Problem”

An Intense World

One thing people do not seem to get when it comes to people on the spectrum is that they literally cannot help certain behaviors, and they do not necessarily respond the same way as regular children or adults do to given situations or requests, depending on how they are delivered. To expect them to do so would be equivalent to expecting a blind student to look at you when you speak to her, or a deaf child to listen up or a man in a wheelchair to walk over to you. There is a tendency to think that the issues surrounding people on the spectrum are “simply” behavioral; however, there is a powerful underlying neurology that affects that behavior and the way they interact with the world and other people.

As a consequence, the situation in our schools is, for those of us who understand what is really going on…

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Meme | Autists Are Ultimate Square Pegs 1 Comment Comments Robert Gehrman Actually I found it floating around, complained and then modified it in photoshop, removing a puzzle piece ribbon, adding the stuff in bottom left corner, and changed the remaining ribbon from saying "awareness" to "acceptance"... But you're quite welcome :)Spread it like the plague if you wish, to drown out the …

“Individuals with autism” – person first vs. identity first language and the worst of both worlds.

Autistic Alex

“Individuals with ASD/autism” is a phrase that I started paying attention to recently, and it’s frustratingly common in autism research. It’s superficially similar to person first language (eg. person with ASD), but without the point and benefit of person first language: affirming our personhood with language. There’s also the identity first variant “autistic individuals”, which I’ve been seeing more of recently.

I personally think that “autistic person” (identity first language) and “person with autism” both talk about how we’re people, and that’s what’s needed. I also think that a lot of the fuss over person first/identity first is a useless distraction, people should use whatever makes sense in a sentence, and not argue that autism needs to be held at arm’s length from the person. So, the “you can’t define yourself by your diagnosis” and “we need to remember that they’re people, so person first” needs to go, but…

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