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Chronic pain sufferer Daisy Hoskins finally gets diagnosis after decades of doubt

Daisy Hoskins lives with chronic pain and has spent her life trying to find out why. As a child, she would go to hospital with severe muscle soreness only to be told her pain was imaginary. Ever since, medical professionals have dismissed her suffering as a result of weight gain and poor mental health. One […]

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Aging & Disability Culture & Community Divergent News Healthcare & Wellness Special Interests

Lena Dunham had COVID-19 – and suffered a variety of complications

Lena Dunham has been open about her battle with the chronic illness Ehlers-Danlos syndrome. Now she’s getting candid about her latest health struggle: COVID-19. The “Girls” alum, 34, revealed on Instagram Friday that she was diagnosed with COVID-19 in mid-March. Although she was “reluctant” to go public with her diagnosis, Dunham hopes detailing her “intense” experience with the virus will curb […]

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Aging & Disability Divergent News Healthcare & Wellness Parenting

‘Fear of future outweighed the fear of Covid’ | Westmeath Independent

You will rarely see Ruby Morrissey (5) without her smile, a sparkly dress, heels, or her lipstick. But behind her sunshine exterior lies major medical challenges for the young Athlone girl, which her family now accept will not be treated in Ireland despite their best efforts. A recently set-up GoFundme page has already raised €4,231 […]

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Aging & Disability Divergent News Healthcare & Wellness

The Ehlers-Danlos Society Announces New HEDGE Screening System | The Ehlers Danlos Society : The Ehlers Danlos Society

    To break down geographical barriers in research participation and to adapt to limitations on travel, The Ehlers-Danlos Society is delighted to announce a new screening and enrollment process for the Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE).  The exciting newly-established process will make it possible for individuals with hypermobile Ehlers-Danlos syndrome (hEDS) to enroll in […]

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Aging & Disability Divergent News Healthcare & Wellness

HEDGE Study for EDS Will Enroll Patients Without In-person Visits

A new screening system will allow people with hypermobile Ehlers-Danlos syndrome (hEDS) to participate in the worldwide Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) study without an in-person visit, the Ehlers-Danlos Society announced in a press release. The changes will help “to break down geographical barriers in research participation and to adapt to limitations on travel,” according to the Society. hEDS is the most […]

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Aging & Disability Divergent News Healthcare & Wellness

Hypermobile Ehlers-Danlos Syndrome (a.k.a. Ehlers-Danlos Syndrome Type III and Ehlers-Danlos Syndrome Hypermobility Type): Clinical Description and Natural History – PubMed

Hypermobile Ehlers-Danlos Syndrome (a.k.a. Ehlers-Danlos Syndrome Type III and Ehlers-Danlos Syndrome Hypermobility Type): Clinical Description and Natural History Brad Tinkle, Marco Castori, Britta Berglund, Helen Cohen, Rodney Grahame, Hanadi Kazkaz, Howard Levy   PMID: 28145611 DOI: 10.1002/ajmg.c.31538 Abstract The hypermobile type of Ehlers-Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue. It has been described largely in those with […]

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Divergent News Healthcare & Wellness

Lena Dunham reveals battle with Ehlers-Danlos syndrome – Gruntstuff

Lena Dunham revealed on Instagram this weekend that she has been dealing with a flare-up of Ehlers-Danlos syndrome (EDS), a continual sickness that weakens connective tissues and impacts the pores and skin, joints and blood vessel partitions. The Golden Globe-winning actress made her revelation alongside a paparazzi picture which captured her strolling to a automotive […]